Financial Support for Medical Expenses
National Organization of Rare Diseases (NORD)
For copays, medical expenses, travel/lodging coverage and more
Patient Assistance Programs - National Organization for Rare Disorders
Patient Access Network (PAN) Foundation
Non-profit dedicated to helping federally and commercially insured people living with life-threatening, chronic, and rare diseases with the out-of-pocket costs for their prescribed medications
Find a disease fund - PAN Foundation
Needy Meds – Finding help with the cost of medication
https://www.needymeds.org/newuser
Toll-free helpline: (800) 503-6897
GeneDx Financial Assistance
Financial Assistance Program - GeneDx®
United Leukodystrophy Foundation – Hultman Memorial Fund
Hultman Memorial Fund - United Leukodystrophy Foundation
A Butterfly for Change – Financial Assistance for Children with Leukodystrophies
Contact – A Butterfly for Change
National Niemann Pick Disease Foundation
Accessia Health
Financial assistance for health insurance premiums, medication copayments, travel, and other essential medical expenses to individuals of all ages with qualifying household income and diagnosed chronic medical conditions.
Accessia Health | Health and Human
Society for Inherited Metabolic Disorders (SIMD)
An organization which aims to increase knowledge of and promote research in inborn errors of metabolism in humans and to stimulate interactions between clinicians and investigators in inborn errors of metabolism
SIMD – Society for Inherited Metabolic Disorders
HealthWell Foundation