https://www.newenglandconsortium.org/home-1 daily 0.75 2021-08-23 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604424343850-JICB9SECIOALQYKHG9FL/Group%2B2017.jpg Home - About US Since 1998, we have brought together healthcare professionals at all levels involved in identifying and treating individuals with metabolic disorders. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880045620-JAVQB0T1U8JCQ77BQTRF/ACP+logo.png Home - Acute illness materials These material are guidelines for healthcare professionals treating newborns at risk for serious metabolic defects, including urea cycle disorders, fatty acid oxidation disorders, and organic acid disorders. Please read our Terms of Use. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880066122-QHN8VANEN5S2VAUJGMCN/Transition+logo.png Home - transition toolkit The Boston Children’s Hospital Transition Toolkit was created for teenagers who are transitioning to adulthood, and who are ready to be in charge of managing their metabolic condition and their health in general. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880115642-OD8M5L5G4RTZ9WOCTT9Z/MC+logo.png Home - regional metabolic centers Metabolic clinics treating individuals with inborn errors of metabolism in the New England states: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880192017-VPTTASDR1VPOXEBOT80A/MPKU.png Home - maternal pku and pregnancy This guide is for women with phenylketonuria (PKU) who are planning a pregnancy or who already are pregnant. With careful planning and the right diet, health care, and information, you can experience the wonder and joy of carrying and delivering a healthy baby. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1622647193803-3ZSUH0ACAJVPD9J4RTFL/Copy+of+2021+Annual+Conference+Friday%2C+November+5%2C+2021%281%29.png Home https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604504958277-ALBF46RZCRVPJBBK7XU0/NERGG.png Home https://www.newenglandconsortium.org/contact daily 0.75 2022-03-28 https://www.newenglandconsortium.org/annual-meeting daily 0.75 2025-07-14 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590178707300-3N61YSEI68EEUR88AZR7/TH+fall+with+water.jpg Annual Meeting Tower Hill Botanic Garden https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/54e36d3b-408f-4988-8a79-3991bfa99ab7/save+the+date.jpg Annual Meeting - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/c56a8d1e-ac11-4dbd-9f41-b3c2508f85ad/NECMP+2024+Sponsors+%282%29.png Annual Meeting - 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includes screening for Massachusetts, Maine, New Hampshire, Rhode Island, and Vermont https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1592839336425-IWNJYM25ZELYP2TFZA6R/conn+ph.jpg Regional Resources Connecticut Newborn Screening Program https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591286201570-WNGOY3X52MW5AS1VEO98/one.jpg Regional Resources https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1592840919015-CYJW96ON69MUV0SUU5LI/nextstep.jpg Regional Resources https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1592841330242-K83KB0AE2RZRADFVLI2Z/gang.jpg Regional Resources https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1592866919941-WA8RA7FLCF0E5DLAJ2HF/rare.jpg Regional Resources https://www.newenglandconsortium.org/metabolic-disorders-1 daily 0.75 2021-08-19 https://www.newenglandconsortium.org/news daily 0.75 2020-05-26 https://www.newenglandconsortium.org/urea-cycle-disorders daily 0.75 2020-11-03 https://www.newenglandconsortium.org/galactosemia- daily 0.75 2020-06-12 https://www.newenglandconsortium.org/transitioning daily 0.75 2020-11-03 https://www.newenglandconsortium.org/video-library daily 0.75 2020-11-04 https://www.newenglandconsortium.org/phenylketonuria daily 0.75 2020-06-23 https://www.newenglandconsortium.org/transition-to-adult daily 0.75 2021-06-02 https://www.newenglandconsortium.org/nutrition-resources daily 0.75 2020-11-05 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604453666067-YYIXFMC3ZNX6RK5BGXBL/nutrition+resources.png Nutrition Resources https://www.newenglandconsortium.org/low-protein-diet-resources daily 0.75 2020-06-12 https://www.newenglandconsortium.org/lp-recipes daily 0.75 2020-11-05 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590689243552-MN9BNE097F6X5HJ4OFLC/pancakes.jpg Low Protein Recipes - Morning treats https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590689642674-NF4FLS0A8J8UBF8M7F6I/pizza.png Low Protein Recipes - The main dish https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590689954130-2CG1U7UD8340AP5HKLT1/easy-green-bean-saute-recipe-2394856-hero-5c3e74a3c9e77c00016335f7.jpg Low Protein Recipes - sides and such https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590690319478-WTBHBET0CO8XNI6RYYZ6/bread.jpg Low Protein Recipes - bread and dough https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590690397427-MCHPQ5KAQJ1WMDRI6WCQ/LowCarbMarshmallowFluffFrosting_1990_10_2.jpg Low Protein Recipes - the sweet finale https://www.newenglandconsortium.org/argininosuccinic-acid-synthetase-deficiency-citrullinemia-as daily 0.75 2020-12-07 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1607310758171-4OC4WBXJYCYR70RPVGHD/Screen+Shot+2020-12-06+at+10.12.22+PM.png Argininosuccinic Acid Synthetase Deficiency (Citrullinemia) (AS) https://www.newenglandconsortium.org/carbamyl-phosphate-synthetase-i-deficiency-cps-i-deficiency daily 0.75 2020-11-03 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591117393982-HJHS1XEEBU0Q0L9KHQ9B/urea-cycle-rev-6-26.jpg Carbamyl Phosphate Synthetase I Deficiency (CPS I Deficiency) https://www.newenglandconsortium.org/ornithine-transcarbamylase-deficiency-otc-deficiency daily 0.75 2020-11-03 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591117273533-96GJ86638GHC5XYYZX54/urea-cycle-rev-6-26.jpg Ornithine Transcarbamylase Deficiency (OTC Deficiency) https://www.newenglandconsortium.org/amino-organic-acid daily 0.75 2021-09-09 https://www.newenglandconsortium.org/neonateinfantchild-with-hyperammonemia daily 0.75 2020-11-03 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591117085819-5SAAY1Y4I5CIWRNZPUX9/urea-cycle-rev-6-26.jpg Neonate/Infant/Child with Hyperammonemia https://www.newenglandconsortium.org/argininosuccinic-acid-lyase-deficiency-asa daily 0.75 2020-12-07 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1607312020536-9YLGN570SG6FXLBBMJCG/Screen+Shot+2020-12-06+at+10.32.59+PM.png Argininosuccinic Acid Lyase Deficiency (ASA) https://www.newenglandconsortium.org/arginase-deficiency daily 0.75 2021-06-02 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591117691152-KXX0PLFHJA3H4L2PGYNZ/urea-cycle-rev-6-26.jpg Arginase Deficiency https://www.newenglandconsortium.org/vlcadd daily 0.75 2020-11-03 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604426073980-MID5VNFUHH2F2LBDUSKY/VLCADD2.png Very Long Chain Acyl-CoA Dehydrogenase Deficiency (VLCADD) Figure created with BioRender.com https://www.newenglandconsortium.org/msud daily 0.75 2020-11-03 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1598817842255-4VT1DLASSZJFXDUCB499/MSUD.png Maple Syrup Urine Disease (MSUD) https://www.newenglandconsortium.org/propionic-acidemia daily 0.75 2020-11-04 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591288244749-C437VK11EZOGR387ZGZO/defect.jpg Propionic Acidemia https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591288283667-VD18EUTC5QYKO50973TP/propi.jpg Propionic Acidemia https://www.newenglandconsortium.org/scadd-espanol daily 0.75 2020-06-04 https://www.newenglandconsortium.org/isova daily 0.75 2020-06-05 https://www.newenglandconsortium.org/methyl daily 0.75 2020-11-04 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591288456822-UVWPXTOLHAQOTYKYO282/methyl.png Methylmalonic Acidemia - Acute Illness Protocol https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591288492565-4N1P7QVCOKPLNEGVWEI9/image-asset.jpeg Methylmalonic Acidemia - Acute Illness Protocol https://www.newenglandconsortium.org/lchadd daily 0.75 2020-12-07 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1607313042202-3IVAEZJRAK7NY3GFLI7A/Screen+Shot+2020-12-06+at+10.50.29+PM.png Long Chain Hydroxy Acyl-CoA Dehydrogenase Deficiency ( LCHADD) https://www.newenglandconsortium.org/scadd daily 0.75 2020-06-04 https://www.newenglandconsortium.org/mcadd daily 0.75 2020-12-07 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1607313756019-KOXPO1A9R0UX8638QB4V/Screen+Shot+2020-09-28+at+2.15.52+PM.png Medium Chain Acyl-CoA Dehydrogenase Deficiency (MCADD) Created with BioRender.com https://www.newenglandconsortium.org/3hmg daily 0.75 2020-12-07 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1607314436006-B8TROHHQFMRU8IC4N5C2/Screen+Shot+2020-12-06+at+11.13.47+PM.png 3-hydroxymethylglutaryl-CoA (3-HMG CoA) Lyase Deficiency https://www.newenglandconsortium.org/3-mcc daily 0.75 2020-12-07 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1607314171123-81AEJX82ISPU0I91T6OM/Screen+Shot+2020-12-06+at+11.09.20+PM.png 3-Methylchrotonyl-CoA (3-MCC) Dehydrogenase Deficiency https://www.newenglandconsortium.org/moving-on-with-mito daily 0.75 2020-11-04 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591677806417-QHMYDIQ36PSEJPQXANRO/graduate-202w.jpg Moving on with Mito - “I look at how Mito made me think differently about life and how much I enjoy it. If they strive to, someone with a medical condition can live a happy life.” https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591678309091-0URYTOQXYU6OAICQVWD4/parts-of-a-cell-rev.jpg Moving on with Mito Parts of a typical human cell https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591678819910-G2LGZ24XZIUJ4O5KZKH3/with-dog.jpg Moving on with Mito - “I (changed the practice of) finding identity in what I do to finding identity in myself as a person.” https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591679178059-0SY64SAZEHQRZEU80H2P/runner.jpg Moving on with Mito Runner with a mitochondrial disorder https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591711137115-VSFKCDWVTNNS69LMVGT4/student-graduating.jpg Moving on with Mito - Student with a mitochondrial disorder graduating Student with a mitochondrial disorder graduating https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591711587462-0LE5H0KMR76GPYBP1LA6/forum-table.jpg Moving on with Mito - Person with a mitochondrial disorder at work https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591712274760-1A407HDJHCOVJ0W3SQNF/couple-at-baseball-game.jpg Moving on with Mito - Woman with a mitochondrial disorder at a baseball game with her partner https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591713665602-7RYAKR6S3NGAIKWQ4RU1/image-asset.jpeg Moving on with Mito https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591714227932-4L7LXSY70HVDTOZNPPKD/varsity-sports-300w.jpg Moving on with Mito https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591714725689-6V3MSVWBT7DGFTY7C10P/college-students-graduating.jpg Moving on with Mito https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591716098155-QUQJOLCDK4C6BCMLG8SS/doctor-and-patient.jpg Moving on with Mito https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591716430855-9SM6AUT10S8CUK4XTFQL/image-asset.jpeg Moving on with Mito - Health Readiness Assessment https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591716464537-XBQODA9Y7EFG8OO3DOB2/image-asset.jpeg Moving on with Mito - Metabolic Condition Basics https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591716503141-JSR2U99T0CIAN9P6F7VU/image-asset.jpeg Moving on with Mito - Medical Health Summary https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591716575768-BP6DVDI0OJMH1HXE4FYA/image-asset.jpeg Moving on with Mito - Transition Plan https://www.newenglandconsortium.org/transition-toolkit daily 0.75 2021-06-14 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603400670426-WY5HNNDMJMRN5W2Z6ZH2/Transition%252Bheader.jpg Transition Toolkit Welcome to the Boston Children’s Hospital Transition Toolkit! As a teenager getting ready for adulthood, or as a young adult, you can begin to take control of how you handle your metabolic condition and your health in general. This Toolkit is designed to help you! To start, read through these materials and fill out the forms. You can also begin to look for an adult-focused doctor to replace your pediatrician who only deals with childhood problems. This process of switching to an adult-focused doctor is called medical care transition and takes time and planning — but once it’s done, it will be great for your future health and success. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591989610760-WPDP7DJC7RSDXVVRSCBU/g01-health-read-assess.jpg Transition Toolkit https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591989629747-Z5C7P96Y4W3VF7MOWW34/g02-met-cond-basics.jpg Transition Toolkit https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591989665145-2YCGA69DFGSIXMBMAP96/g03-med-health-summary.jpg Transition Toolkit https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591989682987-Y0AGRG6GDO6RZLBPQ4LO/g04-transition-plan.jpg Transition Toolkit https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603400745224-CQ0TTJJSTOCP8GFNHNJB/teen-at-laptop.jpg Transition Toolkit Save these forms on your computer and bring them to future medical appointments https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603400820529-02AW1PJY0XMUR9292SH4/teen-and-health-provider.jpg Transition Toolkit Ask a doctor to help you fill out your forms https://www.newenglandconsortium.org/clin-pol daily 0.75 2020-11-04 https://www.newenglandconsortium.org/diet-formula daily 0.75 2020-06-12 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591984308597-C40V2WK2VAJ0UZMT6LWB/Diet+and+formula+logo.png Diet & Formula https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591986378642-AEKEKILECN3RSBKO8VEZ/Formula+tips+%281%29.png Diet & Formula https://www.newenglandconsortium.org/sticking-to-a-special-diet daily 0.75 2020-11-05 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591992940466-5SQFB6S6ROOWZ9K4SNIU/Sticking+to+a+diet+logo.png Sticking to a Special Diet https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591993859934-6GRNI2RSZHMPVA9U4BOD/Met+dis+paragraph.png Sticking to a Special Diet https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591993223229-NLJG6194KCMX6AXD3VRH/helping-children-follow.jpg Sticking to a Special Diet https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591993318659-JF6JOATAUKN60PSGYJSZ/special-diet-as-vehicle-600w.jpg Sticking to a Special Diet https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591994386396-XHV4GXHIDDT8IV2Y8ZPP/child-with-pku-sm150.jpg Sticking to a Special Diet https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1591995105300-28OBIXV3M3JW7PF7WIF2/confidence+quote.png Sticking to a Special Diet https://www.newenglandconsortium.org/pku-recipes daily 0.75 2020-06-23 https://www.newenglandconsortium.org/french-toast daily 0.75 2020-11-05 https://www.newenglandconsortium.org/pierogis daily 0.75 2020-11-05 https://www.newenglandconsortium.org/cinnamon-rolls daily 0.75 2020-11-05 https://www.newenglandconsortium.org/pancakes daily 0.75 2020-11-05 https://www.newenglandconsortium.org/beef-stew daily 0.75 2020-11-05 https://www.newenglandconsortium.org/porridge daily 0.75 2020-11-05 https://www.newenglandconsortium.org/pizza daily 0.75 2020-11-05 https://www.newenglandconsortium.org/educators-pku daily 0.75 2020-11-05 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1592957352861-FCWQYLXYF6CWKZQWZQ7D/elem-classroom.jpg An Educator's Guide to PKU “There is a big learning curve for teachers when they have a student with PKU in their classroom for the first time. It would be helpful to have information about PKU to pass onto teachers so the learning curve doesn’t have to be so big each year.” – Vice Principal of an elementary/middle school with three students with PKU https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1592957921119-CRCCORZV8P7DEB6IRQ2E/PKU-Food-Diagram-copy.jpg An Educator's Guide to PKU https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1592957685614-X8T5E0N1XXNBZO8E8FZO/Formula-drawing-sm.jpg An Educator's Guide to PKU A special formula helps children with PKU get needed nutrients and calories – Drawn by a 5th grader with PKU https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1592958029790-72J17IMQQSAV6QF82H98/student-sm1.jpg An Educator's Guide to PKU “The 504 plan changed her life.” – Mother of a 5th grader with PKU “Her IEP is like a safety net. It gives her support when things are tough.” – Mother of a 10th grader with PKU https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1592958142121-NI7G7R162QX25ILN6UFR/student-drinking-formula.jpg An Educator's Guide to PKU Student with PKU drinking formula https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1592958225283-4DOAWPLTAS162V1FNCOU/student-ski-racer.jpg An Educator's Guide to PKU Student with PKU, with a trophy he won in a skiing competition https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1592958305545-4LASELK525AEVK6K220T/BCH_logo_horz_72dpi_10a.jpg An Educator's Guide to PKU https://www.newenglandconsortium.org/vegetable-chili daily 0.75 2020-11-05 https://www.newenglandconsortium.org/prenatal-edu daily 0.75 2020-10-22 https://www.newenglandconsortium.org/nuggets daily 0.75 2020-11-05 https://www.newenglandconsortium.org/vegetable-jambalaya daily 0.75 2020-11-05 https://www.newenglandconsortium.org/mexican-quiche daily 0.75 2020-11-05 https://www.newenglandconsortium.org/lo-mein daily 0.75 2020-11-05 https://www.newenglandconsortium.org/mushroom-meatballs daily 0.75 2020-11-05 https://www.newenglandconsortium.org/meatless-lasagna daily 0.75 2020-11-05 https://www.newenglandconsortium.org/pasta daily 0.75 2020-11-05 https://www.newenglandconsortium.org/permission-request-form daily 0.75 2020-07-24 https://www.newenglandconsortium.org/maternal-pku-and-pregnancy daily 0.75 2020-11-03 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1596818223839-F5AFOXS1CSVTVODZODNY/Ivory+and+Ash+Grey+Photo+DIY+Influencer+Minimalist+Facebook+Cover.png Maternal PKU and Pregnancy https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1596818646354-JR6X5ZBEG6DB4SN2NGUJ/metabolism-of-phenylalanine1.jpg Maternal PKU and Pregnancy https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1596818705063-6QXS3XA8LIGTNMZ6KBNS/how-you-got-pku-from-parents-03-copy.jpg Maternal PKU and Pregnancy https://www.newenglandconsortium.org/guide-to-galactosemia-and-primary-ovarian-insufficiency-poi daily 0.75 2020-10-23 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603475531600-3FWDZL90ZX1UON6WEL25/family_on_couch.jpg Guide to Galactosemia and Primary Ovarian Insufficiency (POI) https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603475598348-278YH5ET7AGFA0HY8X3M/teen_girl_seated.jpg Guide to Galactosemia and Primary Ovarian Insufficiency (POI) https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603475672496-FQ9711X884XTNRK4U35Q/female_body.gif Guide to Galactosemia and Primary Ovarian Insufficiency (POI) https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603475722562-Y0INILBWUJH1WRFDC29K/teen_girl_at_school.jpg Guide to Galactosemia and Primary Ovarian Insufficiency (POI) https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1597430976959-66IL54X9GT77V3FIUBF5/BCH_logo_horz_72dpi_10a.jpg Guide to Galactosemia and Primary Ovarian Insufficiency (POI) https://www.newenglandconsortium.org/pku-primer-for-adolescents-and-adults daily 0.75 2020-11-05 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603473904561-4WNWJN0I6CQIROEA25MZ/mother_and_baby.jpg PKU Primer for Adolescents and Adults https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1595877552920-4QDQV2HOTB5ZGSE85HES/metabolism-of-phenylalanine1.jpg PKU Primer for Adolescents and Adults https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1595880868568-RZWVBREV9GGTXWI5HK6U/image-asset.jpeg PKU Primer for Adolescents and Adults https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1595880429360-V1UV84FGGEZ3L03M1E5Q/Inheriting-PKU-figure.jpg PKU Primer for Adolescents and Adults https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1595881378423-EIZ496POMPGI5JBCHNJT/maternal_risk_to_fetus_chart-copy.jpg PKU Primer for Adolescents and Adults https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1595882971834-L5ZDAEYAK7Q89UIJYPGF/hrsa.jpg PKU Primer for Adolescents and Adults https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1595882991199-PWUOM9M8ULJ2DWIT3CBA/bch.jpg PKU Primer for Adolescents and Adults https://www.newenglandconsortium.org/pku-and-genetics daily 0.75 2020-08-14 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1597428306302-7MDK61G6LUWD47F4CXZP/your-childs-chances-one1.jpg PKU and Genetics https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1597428332233-FHEHTTUW3KQ7VAXWEAH7/your-childs-chances-two1.jpg PKU and Genetics https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1597428348403-B3VKQ7SIS8GE7TU714F6/your-childs-chances-three1.jpg PKU and Genetics https://www.newenglandconsortium.org/healthy-pku-pregnancy daily 0.75 2020-08-14 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1597428139384-1V7M4X7M28BENLB144TA/pregnant-lady-rev.jpg Healthy PKU Pregnancy https://www.newenglandconsortium.org/about-maternal-pku daily 0.75 2020-08-14 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1597427689720-5X1AV53VNFBN9AHJJAT3/pregnant-woman.jpg About Maternal PKU Pregnant woman drinking low-Phe formula as part of a healthy diet for herself and her baby. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1597427206615-WZMQVHIZ8X4VPEYD72ZH/possible-risks-to-developing-baby.jpg About Maternal PKU https://www.newenglandconsortium.org/pku-nutrition daily 0.75 2020-11-04 https://www.newenglandconsortium.org/newborn-babys-health daily 0.75 2020-08-14 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1597428720554-9XR0S3CLG4V0RINRLGQI/image-asset.jpeg Newborn Baby's Health https://www.newenglandconsortium.org/pku-and-pregnancy-resources daily 0.75 2021-07-16 https://www.newenglandconsortium.org/galactosemia-information-for-educators daily 0.75 2020-11-03 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602874968754-YBD99RH7227O061DXXQ8/finger-paint-girl2-sm.jpg Galactosemia: Information for Educators https://www.newenglandconsortium.org/an-educators-guide-to-urea-cycle-disorders daily 0.75 2021-08-18 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602876547270-EDF8ZYT0NWNSWD1NCWDT/urea+cycle.jpg An Educator's Guide to Urea Cycle Disorders https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602881901372-GLS902613APT8VQ9KALD/girl-w-blue-tshirt.jpg An Educator's Guide to Urea Cycle Disorders 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Educator's Guide to Urea Cycle Disorders Ashley at age 14 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603304066328-6P6ZUISDV7N41C59G0VR/rdcrn-logo-150-wide.jpg An Educator's Guide to Urea Cycle Disorders https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603304078643-C5ECXB9KK21LNYNS6R3A/NICHD-logo-150-wide.jpg An Educator's Guide to Urea Cycle Disorders https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603304093813-MWSS48Y94W8FB7BZ4ALI/Office_rare_disease-110-wide.jpg An Educator's Guide to Urea Cycle Disorders https://www.newenglandconsortium.org/an-educators-guide-to-mcadd daily 0.75 2020-11-03 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603306066339-BMJQKHUHZ41TUSFX7H1C/three-kids-w-title.jpg An Educator's Guide to MCADD https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603306130196-5NGRT0TA3TJEW6AILATU/girl-with-globe.jpg An Educator's Guide to MCADD https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603306289283-YBQWRWJ5VWLRJRJTNLOC/boy-football-small.jpg An Educator's Guide to MCADD https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603306590387-JJW02YNWPZXR8BV1MC6Y/boy-with-jetski-copy.jpg An Educator's Guide to MCADD https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603306715765-MEJW1OUQE1CQMC31SQN8/teacher-with-students-copy.jpg An Educator's Guide to MCADD https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603306751303-IPE1G2VE40XHVZQSVAHK/kids-with-lunchboxes-copy.jpg An Educator's Guide to MCADD https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603306991140-YHHS39DRVM4VWELPJROA/BCH_logo_horz_72dpi_10a+%281%29.jpg An Educator's Guide to MCADD https://www.newenglandconsortium.org/newborn-screening-guide-for-prenatal-educators daily 0.75 2020-10-22 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https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603395971006-64MOI8P1983FMKOA821Y/newborn_screening_for_parents_thumbnail.jpg Newborn Screening Guide for Prenatal Educators https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603395993334-PBL9COMP9VFAY0T05RRS/newborn_screening_report_card_thumbnail.jpg Newborn Screening Guide for Prenatal Educators https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603396199201-ZMQEL249XVF9BND49LJC/ch-hosp-logo-copy.jpg Newborn Screening Guide for Prenatal Educators https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603396222921-LLJ2SM34N9ANCU89S159/negc_logo.jpg Newborn Screening Guide for Prenatal Educators https://www.newenglandconsortium.org/newborn-screening-prenatal-curriculum daily 0.75 2020-11-03 https://www.newenglandconsortium.org/understanding-galacctosemia daily 0.75 2020-11-03 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603399560954-5UL0L74RSEJP447XANJK/fingerpaint-girl-1-sm.jpg Understanding Galacctosemia https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603399541078-9HPZ0Q8YSET0VU0T6KR7/teacher-with-students-sm.jpg Understanding Galacctosemia https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603399368263-3EW1LDJ9XKJ67DGWBPGN/students-with-teacher.jpg Understanding Galacctosemia https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603399385852-Z1T75E70LOV1Z8E0PH9Y/flowers-and-bird-graphic.jpg Understanding Galacctosemia - Thank you https://www.newenglandconsortium.org/newborn-screening-guide-for-parents daily 0.75 2021-12-30 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603393594420-ZXDCZ70LUI942M37VEMD/newborn_nurse_screening_sm.jpg Newborn Screening Guide for Parents 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https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603477812665-4ZHUGXYF9OB9551DXQZE/college-student-with-bike.jpg Other Resources https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603477748549-P6Q6FS4GNYIBIMS42ITG/three-friends.jpg Other Resources https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603477678083-FJY3NUDZHYFVDK7OXEWU/family-of-three.jpg Other Resources https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603477546273-OIH0M6NGBW6E3XPHFQ6E/BCH_logo_horz_72dpi_10a+%281%29.jpg Other Resources https://www.newenglandconsortium.org/mcb-citrin-deficiency daily 0.75 2020-10-23 https://www.newenglandconsortium.org/mcb-homocystinuria daily 0.75 2020-10-23 https://www.newenglandconsortium.org/mcb-nags daily 0.75 2020-10-23 https://www.newenglandconsortium.org/for-women-with-galactosemia-and-poi daily 0.75 2020-10-23 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603477500769-YG2LM15YC1YRYYLVESJK/young_woman.jpg For Women with Galactosemia and POI https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603477457117-D7XYUERANHD62OITD585/teen_girl_at_doctors.jpg For Women with Galactosemia and POI https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603477434367-D09GQ2AHTMH286WT2QCM/couple-on-bench.jpg For Women with Galactosemia and POI https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603477245389-5HXER8WK1X7AYMST1ZPC/BCH_logo_horz_72dpi_10a+%281%29.jpg For Women with Galactosemia and POI https://www.newenglandconsortium.org/mcb-mitochondrial-disorders daily 0.75 2020-10-23 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1603471107921-8Q5RMUYJ8W23IGCTRKS0/parts-of-a-cell-rev.jpg MCB Mitochondrial Disorders Parts of a typical human cell 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https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604458901109-NBDL1E8D1B00OWUQLLUW/Slide1.PNG 2020 Annual Meeting Poster Session https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604459089093-HQ1O6ET7Y9EBWRR40Z82/For+the+Health+of+Their+Children+-+PKU+Caregiver+Study.png 2020 Annual Meeting Poster Session https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604459273323-U5BG6S9PQH1M75WRUTMD/Short-Term+Follow-Up+in+Newborn+Screening+-+The+APHL+STFU+Workgroup.png 2020 Annual Meeting Poster Session https://www.newenglandconsortium.org/poster-session daily 0.75 2020-11-04 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604458599336-MN3X52X3KJWX9XZN2F7A/Slide1.PNG Poster Session https://www.newenglandconsortium.org/galactosemia-guide daily 0.75 2020-11-04 https://www.newenglandconsortium.org/pku-guide daily 0.75 2020-11-04 https://www.newenglandconsortium.org/homocystinuria-hcu daily 0.75 2021-06-01 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https://www.newenglandconsortium.org/galactosemia-1 daily 0.75 2021-06-01 https://www.newenglandconsortium.org/green-beans-with-garlic daily 0.75 2020-11-05 https://www.newenglandconsortium.org/english-muffins daily 0.75 2020-11-05 https://www.newenglandconsortium.org/stuffing daily 0.75 2020-11-05 https://www.newenglandconsortium.org/bagels daily 0.75 2020-11-05 https://www.newenglandconsortium.org/breadsticks daily 0.75 2020-11-05 https://www.newenglandconsortium.org/chicken-noodle-soup daily 0.75 2020-11-05 https://www.newenglandconsortium.org/glazed-carrots daily 0.75 2020-11-05 https://www.newenglandconsortium.org/candycoated-raisins daily 0.75 2020-11-05 https://www.newenglandconsortium.org/scones daily 0.75 2020-11-05 https://www.newenglandconsortium.org/wacky-spice-cake daily 0.75 2020-11-05 https://www.newenglandconsortium.org/butter-almond-crescent-cookies daily 0.75 2020-11-05 https://www.newenglandconsortium.org/vegetable-soup daily 0.75 2020-11-05 https://www.newenglandconsortium.org/fantastic-basic-cookie daily 0.75 2020-11-05 https://www.newenglandconsortium.org/fantastic-cookie-variations daily 0.75 2020-11-05 https://www.newenglandconsortium.org/eggless-egg-nog daily 0.75 2020-11-05 https://www.newenglandconsortium.org/sweet-potato-and-carrot daily 0.75 2020-11-05 https://www.newenglandconsortium.org/gravy daily 0.75 2020-11-05 https://www.newenglandconsortium.org/honey-wheat-bread daily 0.75 2020-11-05 https://www.newenglandconsortium.org/fruit-falsa daily 0.75 2020-11-05 https://www.newenglandconsortium.org/peanut-butter-cookies daily 0.75 2020-11-05 https://www.newenglandconsortium.org/best-banana-bread daily 0.75 2020-11-05 https://www.newenglandconsortium.org/rootamousse daily 0.75 2020-11-05 https://www.newenglandconsortium.org/amazing-chocolate-cake daily 0.75 2020-11-05 https://www.newenglandconsortium.org/lopro-cheesecake daily 0.75 2020-11-05 https://www.newenglandconsortium.org/biscuits daily 0.75 2020-11-05 https://www.newenglandconsortium.org/gazpacho daily 0.75 2020-11-05 https://www.newenglandconsortium.org/what-starch-dough daily 0.75 2020-11-05 https://www.newenglandconsortium.org/new-dough daily 0.75 2020-11-05 https://www.newenglandconsortium.org/good-white-bread daily 0.75 2020-11-05 https://www.newenglandconsortium.org/swiss-tart-pastry-dough daily 0.75 2020-11-05 https://www.newenglandconsortium.org/simple-focaccia-bread daily 0.75 2020-11-05 https://www.newenglandconsortium.org/wheat-starch-dough daily 0.75 2020-11-05 https://www.newenglandconsortium.org/new-england-clinical-trials daily 0.75 2024-05-13 https://www.newenglandconsortium.org/home-3 daily 0.75 2021-08-25 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1629901925886-YQVM0R370R6CU9CLAAPH/Banner+Try.png Home (Copy) https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604424343850-JICB9SECIOALQYKHG9FL/Group%2B2017.jpg Home (Copy) - About US Since 1998, we have brought together healthcare professionals at all levels involved in identifying and treating individuals with metabolic disorders. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880045620-JAVQB0T1U8JCQ77BQTRF/ACP+logo.png Home (Copy) - Acute illness materials These material are guidelines for healthcare professionals treating newborns at risk for serious metabolic defects, including urea cycle disorders, fatty acid oxidation disorders, and organic acid disorders. Please read our Terms of Use. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880066122-QHN8VANEN5S2VAUJGMCN/Transition+logo.png Home (Copy) - transition toolkit The Boston Children’s Hospital Transition Toolkit was created for teenagers who are transitioning to adulthood, and who are ready to be in charge of managing their metabolic condition and their health in general. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880115642-OD8M5L5G4RTZ9WOCTT9Z/MC+logo.png Home (Copy) - regional metabolic centers Metabolic clinics treating individuals with inborn errors of metabolism in the New England states: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880192017-VPTTASDR1VPOXEBOT80A/MPKU.png Home (Copy) - maternal pku and pregnancy This guide is for women with phenylketonuria (PKU) who are planning a pregnancy or who already are pregnant. With careful planning and the right diet, health care, and information, you can experience the wonder and joy of carrying and delivering a healthy baby. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590177985214-O346VB1290446ACX1EQX/Meeting+logo.png Home (Copy) https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604504958277-ALBF46RZCRVPJBBK7XU0/NERGG.png Home (Copy) https://www.newenglandconsortium.org/home daily 1.0 2025-12-04 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1631891276577-TVKEO5SYSXU17V08GDUE/NECMP+Banner Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/beb1cdd7-9ff7-43ea-92bc-1b32a323cf93/consortium+pic.jpg Home - About US Since 1998, we have brought together healthcare professionals at all levels involved in identifying and treating individuals with metabolic disorders. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880045620-JAVQB0T1U8JCQ77BQTRF/ACP+logo.png Home - Acute illness materials These material are guidelines for healthcare professionals treating newborns at risk for serious metabolic defects, including urea cycle disorders, fatty acid oxidation disorders, and organic acid disorders. Please read our Terms of Use. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/774e2446-2363-47ac-b0f2-d2b8d95d0ba4/Screenshot+2025-12-04+150504.png Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880066122-QHN8VANEN5S2VAUJGMCN/Transition+logo.png Home - transition toolkit The Boston Children’s Hospital Transition Toolkit was created for teenagers who are transitioning to adulthood, and who are ready to be in charge of managing their metabolic condition and their health in general. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880115642-OD8M5L5G4RTZ9WOCTT9Z/MC+logo.png Home - regional metabolic centers Metabolic clinics treating individuals with inborn errors of metabolism in the New England states: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880192017-VPTTASDR1VPOXEBOT80A/MPKU.png Home - maternal pku and pregnancy This guide is for women with phenylketonuria (PKU) who are planning a pregnancy or who already are pregnant. With careful planning and the right diet, health care, and information, you can experience the wonder and joy of carrying and delivering a healthy baby. https://www.newenglandconsortium.org/about-us-1 daily 0.75 2021-05-13 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604422027425-82ODWIWKJOFVBE47GQF8/Group+2011.jpg About Us (Copy) 2011 Annual Meeting https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590087926415-2OJOAMLVDW3PKBG0QPS6/susan_waisbren.jpg About Us (Copy) https://www.newenglandconsortium.org/membership-1 daily 0.75 2021-05-13 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604591885037-5Q8765SR3SU071DRJWEF/2019%2Bmeeting.jpg Membership (Copy) 2019 Annual Meeting https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590180555339-4LLUBDJK5935CATW9TNB/Harvey+and+David.JPEG Membership (Copy) 2019 Annual Meeting at Tower Hill https://www.newenglandconsortium.org/annual-meeting-1 daily 0.75 2021-05-13 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590178707300-3N61YSEI68EEUR88AZR7/TH+fall+with+water.jpg Annual Meeting (Copy) Tower Hill Botanic Garden https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604457377831-L5QVO7YQ9AIEHDLK42BI/Program.png Annual Meeting (Copy) https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604591545665-4N46Q66SBH924UDLJAUD/2020+Sponsor+5.png Annual Meeting (Copy) https://www.newenglandconsortium.org/acute-illness-1 daily 0.75 2021-07-14 https://www.newenglandconsortium.org/video-library- daily 0.75 2021-09-08 https://www.newenglandconsortium.org/educators-resources-1 daily 0.75 2021-07-20 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1621364888093-GEL2J7O6ZEJDND8J300F/1.png Education Resources (Copy) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1621367152248-T1JHFQUUI81XMHS4V4KK/1.png Education Resources (Copy) - Make it stand out for prenatal educators to use in teaching expectant parents about newborn screening for metabolic disorders. Included are a screening guide, prenatal curriculum, guide for parents, and a newborn screening report card for newborn babies https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1621367185117-U560692VMV35BEBD7EH6/5.png Education Resources (Copy) - Make it stand out for teachers and school nurses working with students who have urea cycle disorders (UCDs). It includes background information about UCDs, as well as in-school health care strategies, nutrition guidelines, ideas for academic support, and a parent-teacher-school-nurse communication planner. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1621367284039-S88DMSJ7KGOUVMHVRX7A/3.png Education Resources (Copy) - Make it stand out Our group’s members come from clinical, public health, advocacy, and academic settings, and our goal is to promote awareness of and education about genetic conditions. We offer a range of educational and health materials for educators, health care providers, and families. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1621367202944-VYUTXDS2K6S18HTU1M1L/4.png Education Resources (Copy) - Make it stand out for teachers to help support children with PKU at school. Developed in the Divisions of Metabolism and Genetics at Boston Children’s Hospital, with input from teachers, students, and parents, the guide includes helpful information about low-Phe nutrition, common learning challenges, guidance for educators, resources to find additional information and support, and more. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1621367226169-J9G8XWTS9FDIXEE18MC7/2.png Education Resources (Copy) - Make it stand out Online and print guides are for teachers with students who have galactosemia, and feature information about teaching strategies, therapies, classroom environments, teaching technologies, and other resources. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1621367353911-U5XLIYGRRWF5XJB8XK04/6.png Education Resources (Copy) - Make it stand out online and print guide is for teachers of students who have MCADD (medium chain acyl-CoA dehydrogenase deficiency). The guide offers information about the condition, signs and symptoms of a health crisis, treatment and prevention, and a summary of recent research. It includes a section on how teachers can help their students avoid problems, with tips provided by parents of children with MCADD. https://www.newenglandconsortium.org/metabolic-disorders-1-1 daily 0.75 2021-05-25 https://www.newenglandconsortium.org/nutrition-resources-1 daily 0.75 2021-08-20 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604453666067-YYIXFMC3ZNX6RK5BGXBL/nutrition+resources.png Nutrition Resources (Copy) https://www.newenglandconsortium.org/pku-open-page daily 0.75 2022-06-16 https://www.newenglandconsortium.org/galactosemia-open-page daily 0.75 2021-08-18 https://www.newenglandconsortium.org/prenatal-edu-1 daily 0.75 2021-07-06 https://www.newenglandconsortium.org/additional-resources daily 0.75 2026-02-04 https://www.newenglandconsortium.org/bellas-library daily 0.75 2021-09-17 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1626793976252-FPNVH83ITI6717S76A93/Bella%27s+Library+Font+Outside+Final.png Bella's Library - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.newenglandconsortium.org/fatty-acid-disorders daily 0.75 2021-09-09 https://www.newenglandconsortium.org/urea-cycle-disorders-1 daily 0.75 2021-09-09 https://www.newenglandconsortium.org/other-disorders daily 0.75 2021-08-20 https://www.newenglandconsortium.org/mitchondrial-disorders-open-page daily 0.75 2021-08-20 https://www.newenglandconsortium.org/hyperammonemia-open-page daily 0.75 2021-08-18 https://www.newenglandconsortium.org/cps-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/otc-deficiency-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/citrullinemia-i-open-page daily 0.75 2021-08-18 https://www.newenglandconsortium.org/asa-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/arginase-open-page daily 0.75 2021-08-18 https://www.newenglandconsortium.org/nags-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/lchadd-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/vlcadd-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/mcadd-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/scadd-open-page daily 0.75 2022-06-03 https://www.newenglandconsortium.org/cpt-i-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/cpt-ii-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/hcu-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/msud-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/propionic-acidemia-open-page daily 0.75 2021-08-19 https://www.newenglandconsortium.org/methylmalonic-acidemia-open-page daily 0.75 2021-08-19 https://www.newenglandconsortium.org/3-mcc-open-page daily 0.75 2021-08-19 https://www.newenglandconsortium.org/3hmgcoa-open-page daily 0.75 2021-09-09 https://www.newenglandconsortium.org/isovoleric-acidemia-open-page daily 0.75 2021-08-19 https://www.newenglandconsortium.org/home-2 daily 0.75 2021-08-25 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1629903930683-NU1QB0W0O4VEQ01SXV79/NECMP+Banner+2021.png Home (Copy) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604424343850-JICB9SECIOALQYKHG9FL/Group%2B2017.jpg Home (Copy) - About US Since 1998, we have brought together healthcare professionals at all levels involved in identifying and treating individuals with metabolic disorders. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880045620-JAVQB0T1U8JCQ77BQTRF/ACP+logo.png Home (Copy) - Acute illness materials These material are guidelines for healthcare professionals treating newborns at risk for serious metabolic defects, including urea cycle disorders, fatty acid oxidation disorders, and organic acid disorders. Please read our Terms of Use. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880066122-QHN8VANEN5S2VAUJGMCN/Transition+logo.png Home (Copy) - transition toolkit The Boston Children’s Hospital Transition Toolkit was created for teenagers who are transitioning to adulthood, and who are ready to be in charge of managing their metabolic condition and their health in general. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880115642-OD8M5L5G4RTZ9WOCTT9Z/MC+logo.png Home (Copy) - regional metabolic centers Metabolic clinics treating individuals with inborn errors of metabolism in the New England states: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880192017-VPTTASDR1VPOXEBOT80A/MPKU.png Home (Copy) - maternal pku and pregnancy This guide is for women with phenylketonuria (PKU) who are planning a pregnancy or who already are pregnant. With careful planning and the right diet, health care, and information, you can experience the wonder and joy of carrying and delivering a healthy baby. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590177985214-O346VB1290446ACX1EQX/Meeting+logo.png Home (Copy) https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604504958277-ALBF46RZCRVPJBBK7XU0/NERGG.png Home (Copy) https://www.newenglandconsortium.org/home-2-1 daily 0.75 2021-09-17 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1631891184018-LF905N2WX6VTF4NPRB3J/Banner Home (Copy) (Copy) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604424343850-JICB9SECIOALQYKHG9FL/Group%2B2017.jpg Home (Copy) (Copy) - About US Since 1998, we have brought together healthcare professionals at all levels involved in identifying and treating individuals with metabolic disorders. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880045620-JAVQB0T1U8JCQ77BQTRF/ACP+logo.png Home (Copy) (Copy) - Acute illness materials These material are guidelines for healthcare professionals treating newborns at risk for serious metabolic defects, including urea cycle disorders, fatty acid oxidation disorders, and organic acid disorders. Please read our Terms of Use. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880066122-QHN8VANEN5S2VAUJGMCN/Transition+logo.png Home (Copy) (Copy) - transition toolkit The Boston Children’s Hospital Transition Toolkit was created for teenagers who are transitioning to adulthood, and who are ready to be in charge of managing their metabolic condition and their health in general. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880115642-OD8M5L5G4RTZ9WOCTT9Z/MC+logo.png Home (Copy) (Copy) - regional metabolic centers Metabolic clinics treating individuals with inborn errors of metabolism in the New England states: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1602880192017-VPTTASDR1VPOXEBOT80A/MPKU.png Home (Copy) (Copy) - maternal pku and pregnancy This guide is for women with phenylketonuria (PKU) who are planning a pregnancy or who already are pregnant. With careful planning and the right diet, health care, and information, you can experience the wonder and joy of carrying and delivering a healthy baby. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1590177985214-O346VB1290446ACX1EQX/Meeting+logo.png Home (Copy) (Copy) https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/1604504958277-ALBF46RZCRVPJBBK7XU0/NERGG.png Home (Copy) (Copy) https://www.newenglandconsortium.org/early-access-program-with-arimoclomol-in-us-patients-with-npc daily 0.75 2022-02-18 https://www.newenglandconsortium.org/pegtibatinase daily 0.75 2022-02-18 https://www.newenglandconsortium.org/gene-therapy-clinical-study-in-adult-pku-phenix daily 0.75 2022-02-18 https://www.newenglandconsortium.org/bmn-307902-a-prospective-clinical-study-of-phenylketonuria-pku daily 0.75 2022-02-18 https://www.newenglandconsortium.org/pku-patient-tracking-and-outreach-for-lost-to-followup-patients daily 0.75 2022-06-21 https://www.newenglandconsortium.org/openlabeled-dose-escalation daily 0.75 2022-02-18 https://www.newenglandconsortium.org/phase-2-openlabel-dose-escalation-study-of-hst5040 daily 0.75 2022-02-18 https://www.newenglandconsortium.org/global-openlabel-propionic-acidemia daily 0.75 2022-02-18 https://www.newenglandconsortium.org/open-label-hunter-syndrome daily 0.75 2022-02-18 https://www.newenglandconsortium.org/potential-treatmentresponsive-biomarkers-in-hunter-syndrome daily 0.75 2022-02-18 https://www.newenglandconsortium.org/mpsii-idursulfase daily 0.75 2022-02-18 https://www.newenglandconsortium.org/study-of-hst5040-in-subjects-with-propionic-or-methylmalonic-acidemia-hero daily 0.75 2022-02-18 https://www.newenglandconsortium.org/vatiquinone-for-treating-mitochondrial-disease-in-participants-with-refractory-epilepsy-mite daily 0.75 2022-02-18 https://www.newenglandconsortium.org/hmi103-adults-with-classical-pku-due-to-pah-deficiency daily 0.75 2022-02-18 https://www.newenglandconsortium.org/2025-program daily 0.75 2025-11-19 https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/a5113498-8ffc-4948-b720-663202773b2e/NECMP+2025+Agenda_Page_1.jpg 2025 Meeting Information - 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Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/c176621f-75c3-4258-8b11-a36dba144a68/Virtual+Posters+Combined+image_Page_8.jpg 2025 Meeting Information - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/2aa5e5aa-ca0d-492c-9d14-3c06da26f348/NECMP_QOL+Encore+Poster_Final_v3.0.jpg 2025 Meeting Information - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5ea9c07209fe541ac782bd9b/ce2d5015-d3f8-411d-969e-bc7651ff9d26/new+combined+posters_Page_10.jpg 2025 Meeting Information - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.newenglandconsortium.org/synb1934-in-patients-with-pku daily 0.75 2024-01-09 https://www.newenglandconsortium.org/home-alt-bedford daily 0.75 2025-05-09 https://images.squarespace-cdn.com/content/v1/52a74d9ae4b0253945d2aee9/1390500612440-PGQSIY8KL9F7T5VIXQLO/chambers-2.jpg Home Alt A better world Starts with a choice Contact Us https://images.squarespace-cdn.com/content/v1/52a74d9ae4b0253945d2aee9/1390500503574-5BAPXZO9U06UV61P49UO/chambers1.jpg Home Alt Sustainability Starts with you Join Us https://images.squarespace-cdn.com/content/v1/52a74d9ae4b0253945d2aee9/1390500933384-LII4SRIPHFYOUFX0UCXC/chambers-4.jpg Home Alt A better world Starts with a choice Join Us https://images.squarespace-cdn.com/content/v1/52a74d9ae4b0253945d2aee9/1390504287124-HQ8GNX1JCE22V047MSQ9/chambers-8.jpg Home Alt Preserve Nature Join Us https://www.newenglandconsortium.org/nutritional-support daily 0.75 2025-12-04 https://www.newenglandconsortium.org/baby-supplies daily 0.75 2026-02-18 https://www.newenglandconsortium.org/housing daily 0.75 2025-12-04 https://www.newenglandconsortium.org/utilities daily 0.75 2026-02-18 https://www.newenglandconsortium.org/nonemergency-medical-transportation daily 0.75 2025-12-04 https://www.newenglandconsortium.org/affordable-lodging daily 0.75 2025-12-04 https://www.newenglandconsortium.org/child-care-support daily 0.75 2025-12-04 https://www.newenglandconsortium.org/early-intervention-programs daily 0.75 2025-12-04 https://www.newenglandconsortium.org/financial-support daily 0.75 2025-12-04 https://www.newenglandconsortium.org/new-family-transition daily 0.75 2025-12-04 https://www.newenglandconsortium.org/disability-based-programs daily 0.75 2025-12-04 https://www.newenglandconsortium.org/caregiver-resources daily 0.75 2026-03-13 https://www.newenglandconsortium.org/finding-a-pcp daily 0.75 2025-12-04 https://www.newenglandconsortium.org/healthcare-education-and-young-adult-transition daily 0.75 2025-12-04 https://www.newenglandconsortium.org/in-home-care daily 0.75 2026-03-10 https://www.newenglandconsortium.org/caregiver-support daily 0.75 2025-12-04 https://www.newenglandconsortium.org/peer-to-peer daily 0.75 2026-03-13 https://www.newenglandconsortium.org/behavioral-health daily 0.75 2026-03-13 https://www.newenglandconsortium.org/genetic-counseling daily 0.75 2026-03-13 https://www.newenglandconsortium.org/special-education daily 0.75 2026-03-13 https://www.newenglandconsortium.org/disease-networks daily 0.75 2026-03-13 https://www.newenglandconsortium.org/resources-for-autism-spectrum-disorder daily 0.75 2026-03-13 https://www.newenglandconsortium.org/durable-medical-equipment daily 0.75 2026-03-13 https://www.newenglandconsortium.org/legal-help daily 0.75 2026-01-13 https://www.newenglandconsortium.org/resources-for-domestic-violence daily 0.75 2026-03-13 https://www.newenglandconsortium.org/moments-of-joy daily 0.75 2026-02-18