International Travel Tips
Visit the European Society for PKU (ESPKU) travel database and take the time to visit others with PKU.
- Keep in mind that different countries count PHEs differently.
- Try to learn a few key PKU relevant phrases in the language of the country you are visiting.
- Have the address and the phone number of the American Embassy in case of an emergence.
- Some countries, like Germany, have bakeries that make low protein baked goods.
- Travel with appropriate documents (letter from physician/clinic, prescription etc.) that describe PKU and the diet. Have the letter mention any items you might be carrying such as formula, low protein foods and a gram scale. If traveling to a country that speaks another language, have the documents in that language as well.
- Read the label thoroughly and check for aspartame in everything. It can be found in many things that are not for diet.
- Have your medical home locate a doctor who you can contact abroad. They can help you with items you may need.
- If staying for an extended period of time, have arranged with someone in the U.S. to send you items or products you may have forgotten or need.
- If necessary, bring a power converter.
PKU Toolkit
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