PKU Toolkit - A Guide to PKU Management for Teens and Young Adults - Produced by Children's Hospital Boston, Applied Nutrition, and the New England Consortium of Metabolic Programs
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International Travel Tips

  1. An image of the eiffel tower in franceVisit the European Society for PKU (ESPKU) travel database and take the time to visit others with PKU.
  2. Keep in mind that different countries count PHEs differently.
  3. Try to learn a few key PKU relevant phrases in the language of the country you are visiting.
  4. Have the address and the phone number of the American Embassy in case of an emergence.
  5. Some countries, like Germany, have bakeries that make low protein baked goods.
  6. Travel with appropriate documents (letter from physician/clinic, prescription etc.) that describe PKU and the diet. Have the letter mention any items you might be carrying such as formula, low protein foods and a gram scale. If traveling to a country that speaks another language, have the documents in that language as well.
  7. Read the label thoroughly and check for aspartame in everything. It can be found in many things that are not for diet. 
  8. Have your medical home locate a doctor who you can contact abroad. They can help you with items you may need.
  9. If staying for an extended period of time, have arranged with someone in the U.S. to send you items or products you may have forgotten or need.
  10. If necessary, bring a power converter.
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