PKU Toolkit - A Guide to PKU Management for Teens and Young Adults - Produced by Children's Hospital Boston, Applied Nutrition, and the New England Consortium of Metabolic Programs
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Transition Planning Timeline

You can use this timeline to guide you as you handle the transition from pediatric to adult health care.


By age 15
  • Learn more about your condition and special health care needs
  • Learn about health care transitions and how they will affect you as you grow older
  • Speak with your family about transition planning

By age 16
  • Identify your primary care provider
  • Start working on managing your health care
  • Make your own medical appointments and keep track of them
  • Spend time alone with you health care provider and discuss questions you may have
  • For girls: schedule your first gynecology appointment

By age 18
  • Work on managing your health care
  • Learn about your health insurance coverage
  • Explore options for adult health care — both primary care and specialty care
  • Establish a support system of family, friends and teachers
  • Register to vote

By age 21-25
  • Focus on adult needs — health care, independent living, employment, relationships, and finances
  • Transfer your health care to an adult setting
  • Actively work with your health care team to assure that you receive optimal care

 

 

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