Resources

There are many websites and resources out there for you to learn more about PKU and its treatment.

Here are some places to start:

National PKU News:
http://web47.radiant.net/~pkunews/index.htm

The New England Consortium of Metabolic Programs:
http://newenglandconsortium.org/

The National Coalition for PKU & Allied Disorders:
http://www.pku-allieddisorders.org/

University of Washington. PKU Clinic
http://depts.washington.edu/pku/

The Mid-Atlantic Connection for PKU and Applied Disorders, Inc.
http://www.macpad.org/

Your Genes, Your Health
http://ygyh.org/pku/whatisit.htm

Dietary Specialties
http://www.dietspec.com

Nutricia
http://www.shsna.com/

Don’t be overwhelmed by the amount of information out there. Try to find resources that interest you the most. You have time to gather the information you need!