A good start to find out more!
There are plenty of websites and resources out there for you to learn more about your PKU and its treatment!
A good start is:
National PKU News:
http://web47.radiant.net/~pkunews/index.htm
The New England Consortium of Metabolic Programs:
http://www.childrenshospital.org/newenglandconsortium/
The National Coalition for PKU & Allied Disorders:
http://www.pku-allieddisorders.org/
University of Washington. PKU Clinic
http://depts.washington.edu/pku/
The Mid-Atlantic Connection for PKU and Applied Disorders, Inc.
http://www.macpad.org/
Your Genes, Your Health
http://ygyh.org/pku/whatisit.htm
Dietary Specialties
http://www.dietspec.com
Nutricia
http://www.shsna.com/
Don’t be overwhelmed by the amount of information!
Try to find those that interest you the most!
You have all the time in the world!
