Welcome to the online PKU Toolkit! Congratulations to you!!!
You have just taken a step in the right direction. Whether you are returning to diet or are on diet, this toolkit will help you on your way to better PKU control and health!
People returning to the diet
Depending on how long you have been off diet, you may be surprised to see how many new options in PKU formula and low-protein foods now exist. These new products have been designed to make following the PKU diet easy, convenient and tasty. This guide will help you learn more about your options. PKU diet is challenging, but there are ways to overcome the barriers!
People on the PKU diet
You may already know just how important staying on the diet is for your health and well being. This toolkit will give you more information, tools and tips to make the journey with the PKU diet easier.
People interested in learning more about PKU
This toolkit offers a complete guide for PKU, its treatment and various issues that concern people with PKU. Reading and using this toolkit can be useful for family, friends and significant others.
This toolkit can be your personal guide through your PKU. We have provided a lot of information and resources that we think are important for adults with PKU and may make your life a little easier.
This can be your personal PKU toolkit. Fill out the check lists and quizzes! They will all help you to better manage your PKU. You can insert materials you find useful or have gathered in the past! And you can have all the information about your PKU gathered and organized!
This toolkit was part of Susan Waisbren’s , PhD, vision for the Transition to Adult Care Education Initiative for adolescents and young adults with metabolic disorders. The idea originated from Robin Schwartz, MA, genetic counselor, during a session of the New England Consortium of Metabolic Programs. Under Dr. Waisbren’s supervision, Afroditi Veloudaki, MA, compiled, adapted or wrote the contents of this toolkit. As a graduate student of Health Communication at Emerson College she worked with the Children’s Hospital team to design and create the materials that compose this effort. Her supervisor at Emerson College was Timothy Edgar, PhD.
